ADHD

‘I hate you! I want a different mom!’ He is getting bigger, I have to physically restrain him.’: Mom says son’s childhood has been ‘violently stolen’ due to PANDAS/PANS diagnosis, ‘It’s sad, unfair, heartbreaking’

“I wrote the single hardest thing: ‘I don’t like being a parent.’ His meltdowns consist of screaming, hitting, throwing, breaking things, slamming doors, spitting, you name it. I have to restrain him. I poured my heart out, frustrated, at my wits end. Then I got a message. ‘I think your son has PANDAS/PANS. My son does, and I think you need to have him tested.’ Then the warning came: Some people don’t believe in this diagnosis.”

‘We went from 3 to 6 kids in two months. Then all hell broke loose. Our house became a warzone.’: Adoptive mom once on verge of ‘mental breakdown’ vows to do everything in her power to help families in ‘craziest, worst of situations’

“‘I’m dating to find a wife, so if you realize you can’t marry me, let me know. Also, whomever I marry has to be open to adoption.’ That’s how my husband opened our first date. What he didn’t know, was I was an adult adoptee.”

‘Abby got annoyed with a little boy. She tried to stab him with her pencil. Yup, you heard right.’: Mom of special needs child was ‘mortified, in shock,’ but grateful her school was ‘supportive’ and ‘loves’ her daughter

“Abby has issues expressing herself at times, and when she is frustrated, she sees red and watch out to whoever is near her, because she will make it known that she is upset. We have been teaching her keep your hands to yourself, don’t hit, don’t hurt anyone – If you saw her, you’d think, she is tiny, adorable, she wouldn’t hurt a fly. Wrong.”

‘Please Mom, I don’t want to leave. I promise I’ll be good. I don’t like myself very much.’: Sister’s heartbreaking tribute to her late big brother who society deemed ‘the bad kid’

“I’d watched life treat my brother Glen so unfairly. I wanted so badly for something to go right for him. One night, he was extremely upset. My father picked my mom and I up. Glen called us to see where we were, and I still remember her last words to him. ‘We’re giving you space for the night, but we want to help you, Glen.’ The next morning, we were greeted by my dog at the front door. She was crying.”

‘Did you not get my letter? Your dad’s been dead 7 months. He killed himself.’ Imagine being told that over the phone.’: Woman endures years of trauma, meets ‘saving grace’ who saved her life

“I don’t know what sound came out of me, but I know I started screaming, shaking. I ran to the bathroom and sat on the floor for about half an hour before I could even stand up. Students put posters in their friends lockers with sweet notes. My ‘Get Well Soon’ poster comments were ‘Hope You Die’ and ‘Don’t Come Back.’ That month changed everything, including my innocence.”

‘My daughter morphed overnight. My happy girl became dead-eyed, hateful. Her pupils were dilated and dark. I felt like I lost my daughter. We couldn’t figure out how to make it stop.’

“New issues kept popping up. Screeching, laughing for no reason, wetting the bed. She couldn’t finish her sentences. She’d think all types of disturbing thoughts about hurting her little sister. I had to explain to my 5-year-old why she didn’t want to play with her anymore. I felt like a failure of a mom. I knew I had to find answers.”

‘He literally turned into a rabid wild animal! His face looked evil. I couldn’t believe this was our sweet boy.’: Son diagnosed with PANDAS disorder

“He came home from school a different boy. He wanted to hide behind the couch. He snapped and growled at his siblings. ‘Did something happen at school?,’ I asked him. ‘No,’ he replied, crying his eyes out. We started noticing unusual symptoms in our younger son too. Little did I know, this was just the beginning of our nightmare. I just didn’t know what to do to help him. One of the ladies suggested I look into PANDAS. “

‘I thought she was crazy. I got a text from my dad. ‘Your mom thinks Spencer’s tics are because of strep throat.’ I blew her off. Suddenly, he began wetting the bed nightly.’

“We had absolutely no idea what was going on. His behavior was changing. He’d been in daycare since he was 12 weeks old and LOVED his school. Now he’d cling to us at drop off and require 15 hugs before we could – with him still screaming and crying- finally leave him. We assumed he was ‘going through a phase.’ I felt like we were ‘losing’ him.”

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