autistic

‘I went home after my son’s transplant, only to receive an angry letter about the ‘eyesore’ exterior of my home.’: Woman’s son diagnosed with Stage 4 cancer, community unites to clean her home in wake of insensitive complaint

“My son kept holding his right side and screaming. They told me he was ‘just constipated’. ‘Constipation shouldn’t be making him scream.’ They thought I was some crazy helicopter mom. The doctor’s response? ‘Well, if it was real pain, you holding and consoling him wouldn’t be making him feel better like it is now.’ Boy, was she wrong. I could feel in my spirit something was wrong with my baby boy.”

‘Charlie?! CHARLIE!’ My son wouldn’t look at me anymore. I didn’t even recognize him. My entire world came crashing down. The doctor told me ‘not to worry’. I later learned how wrong she was.’

“It all happened so fast. He stopped speaking altogether. I wasn’t hearing his sweet little voice saying ‘thank you’ after I gave him a cookie. He didn’t like to be touched anymore. He avoided people, even us, his parents. I wasn’t prepared to hear the diagnosis. It hit me hard. My jaw dropped.”

‘Oh my Gosh, she’s a baby. ‘I’m saying yes,’ I typed to him in Afghanistan. ‘Say yes,’ he responded simultaneously. ‘We’ll take her!’ I nearly shouted into the phone.’

“‘Dad has to move to Colorado,’ I told our sons. ‘He doesn’t have a choice’ ‘We’re not leaving her, right?,’ Aidan interrupted, his tone laced with terror. ‘We can’t just leave her!’ His voice was sandpaper rough, speaking the words I couldn’t. ‘We…we might have to make a tough decision.’ ‘I know,’ I whispered.”

‘I got on the bus. 3 boys yelled at me, ‘Hey white boy!’ ‘Mom, I was nervous.’ After all, I was the only white boy on the bus. They asked if I use the N-word. ‘No,’ my Stepdad is black. He’s my family.’

“Austin, my son with autism, asked him, ‘Have you killed anyone in a war?’ I quickly tried to hush him up. He looked at Austin and said, ‘No, but I know bullets can kill.’ Austin looked perplexed. ‘Do you like video games?’ ‘Yes, I love video games.’ Austin smiled from ear to ear.”

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