awareness

‘I don’t really know what to say. Would you like tea?’ I’d just found out my boy wasn’t fine, he’d never be fine, and our life was forever changed.’: Mom’s son diagnosed with rare Vanishing White Matter terminal illness

“He wasn’t able to walk or stand. He was dragging one of his legs and crisscrossing them. Friends and family kept trying to reassure me everything would be okay, but I knew it wouldn’t. I could tell by how the doctors tiptoed around us, the way they were spending so much time with us. ‘It’s progressive, untreatable, incurable, and terminal.’ Despite all this, Sam is joy personified. He is the most incredible person I’ve ever met.”

‘Our marriage was over. I found out things about him that left me devastated. I was raised in a home where divorce didn’t happen.’: Mom overcomes divorce and alcoholism with 2 years of sobriety

“I called a guy on the phone. He was like, ‘are you drunk?’ I said, ‘no,’ and my friends started laughing. Here I was, 24 years old, single mom of 2 boys and working 2 jobs. I was hurting and every chance I got I went to bars and drank more than I should have. I was in self-destruct mode.”

‘Overnight, our 15-month-old’s personality changed. A once easy-going child turned aggressive, OCD’ish.’: Mom learns of son’s PANDAS/PANS diagnosis, ‘There was ZERO doubt in my mind he had this’

“He would scream bloody murder to get in the bath tub, and became obsessed with wearing ‘soft’ clothes. It was like walking on eggshells since an explosion could happen at any moment for no reason. I chalked it up to him being a toddler, with a new baby brother and all the changes military life brings. Over time, I knew this was not the case.”

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