birth story

‘What’s wrong with her fingers?,’ my husband asked. ‘They look strange, but they’re perfect.’ Then he saw her toes.’: Parents surprised by daughter’s Apert Syndrome diagnosis, ‘she just wants to be loved’

“The doctor yelled to get the NICU team as soon as possible. They came in so fast we could hardly get a picture. I don’t remember anything afterwards except that my husband googled her syndrome based on her appearance, and I was left alone in the delivery room. No husband. No baby. I asked for a Diet Coke. They only had Diet Pepsi.”

‘Hubby: ‘I sent these pictures to work to show them the baby. They’re good, right?’ Me: ‘You’re kidding me, right? OH MY GOD! I am NOT covered up down there! Did you even LOOK at them?’

“Hubby: (in a rising and panicked voice). ‘Well, yeah. And I even had your DAD look at them before I sent them!’ My dad’s eyes are bulging out of his head. Dad starts trying to defend them. ‘We were just looking at your faces, it was a cute family photo…. Well, from the top up!’ My husband goes into damage control. ‘Oh no, oh my God, how did I miss that?’”

‘We were two girls having fun or so we thought. We loved each other at 16-years-old.’: Young women fall in love in secret and worry about their love being ‘accepted’

“I was sick of being a secret as if it was wrong or dirty, as if our love wasn’t acceptable. I returned home to find a sign on my gate door saying, ‘this way to happy ever after.’ I thought nothing of it. Zaynah stood there looking as pretty as a picture with a build a bear teddy and a rose which said, ‘I Love You, Will You Marry Me?’“

‘None of them had seen a case like Dominic’s. The amount of birthmarks was shocking.’: Mom gives birth to son with rare skin condition

“I willed my legs awake from the spinal tap, like Uma Thurman in ‘Kill Bill,’ and then I physically dragged myself from my bed to a wheelchair to see him. I demanded a nurse take me to him. He was blue, his skin covered with deep purple spots. He wasn’t crying. The whole room was especially quiet. They had no clue what was going on with his skin.”

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