chronic illness

‘This is the mask of a Type 1 Diabetic caregiver. You’ll find us at 3 a.m. just trying to keep our child alive.’: Mom to son with Type 1 Diabetes claims ‘we are the strongest mothers you will ever meet’

“We are supported to teach our kids to dream. But their dream is a cure. Firefighter, pilot. ‘Too risky,’ we tell them. The anxiety of death is real. Instead, we train them to get a job with ‘good benefits,’ a conversation no parent should be having with an 11 year old. You’ll find us at 3 a.m., wide awake, just trying to keep our child alive.”

‘My left shoulder dislocated talking to my mom. She was mortified. ‘AHAA!,’ he said.’: Young woman recalls ‘party tricks’ as joints dislocate after Ehlers-Danlos Syndrome diagnosis

“I woke up with a sore knee. We ignored it… until the pain became unbearable and was spreading. It all happened so fast. I was too overwhelmed to be scared. However, I was confused. We all were. The tricks I used to gross my friends out ended up being a piece of the puzzle. Hyper mobility, one of the most obvious symptoms of EDS.”

‘Really? Can I? I’ll be there at 2:30 a.m.’ He seemed surprised. He didn’t expect me to say yes.’: Young woman moves in with man she found on Facebook after chance encounter in McDonald’s, ‘I found a love I never knew existed’

“When I first met him, I was cleaning tables at McDonald’s. He was so sexy and had the most beautiful blue eyes I’d ever seen. And he just HAD to hold them on mine. We parted ways, but later I found him on social media. I essentially moved in that first night.”

‘I felt itching on my stomach, noticed a small black spec. I became panicked. My boss looked at me. ‘That’s a tick!’: Young woman encourages others battling invisible illness to ‘never stop fighting’

“I remember riding the train and I felt like a stranger was living in my body. I didn’t feel like myself… I felt like my world was constantly spinning, I was beyond exhausted, no matter how much I slept, and I often found myself wearing sunglasses because the light bothered me so much. Before this, I didn’t even own a pair. I got a call from the Urgent Care. ‘You tested positive for Lyme Disease. You need to come get you an antibiotic.’”

‘I’m often mistaken for being lazy or spoiled. The dirty looks I get would shock you. I may look like a typical 23-year-old, but I’m not.’: Woman with multiple ‘invisible’ chronic illnesses refuses to let struggles ‘overcome her joy’

“My determination isn’t disabled, my fire isn’t disabled, but my body is. For a long time, this was hard to admit. I do my best to show up every day, but it’s not always enough. I can practically smell the resentment from my coworkers. My boss stopped believing me and asked for a ‘doctor’s note.’ Instead, I ended up hospitalized. ‘Is this good enough?’ I snarkily asked. I know I should keep my mouth shut, but I really can’t help myself. The struggle is REAL.”

‘I want to live in my parents’ basement with 13 kids and no husband,’ said 3-year-old me. One part is true. Babies, and lots of ‘em!’: Woman shares emotional battle with Endometriosis, knows she’ll someday ‘be a mama’

“I dreamt of the day I’d turn in my baby dolls for the real deal. Fast forward 23 years, and here I am. Married to the man of my dreams. Our home is full, but our arms empty. We wanted the big family, sleepless nights, poopy diapers. We wanted it. So, we tried. And tried. After 6 months of negative tests, I knew something was off. They found 2 masses on my ovaries the size of a lemon and a golf ball.”

‘Please Mom, I don’t want to leave. I promise I’ll be good. I don’t like myself very much.’: Sister’s heartbreaking tribute to her late big brother who society deemed ‘the bad kid’

“I’d watched life treat my brother Glen so unfairly. I wanted so badly for something to go right for him. One night, he was extremely upset. My father picked my mom and I up. Glen called us to see where we were, and I still remember her last words to him. ‘We’re giving you space for the night, but we want to help you, Glen.’ The next morning, we were greeted by my dog at the front door. She was crying.”

‘After a yoga session, my spine slipped forward. I couldn’t move. I couldn’t roll over. I was a vegetable.’: Woman with Spondylolisthesis, chronic illness claims ‘pain is inevitable,’ but ‘suffering is optional’

“I remember laying in bed, feeling trapped inside myself. I had no idea at the time this injury would turn my world upside down and become the barometer for all the decisions I made for the rest of my life. Working, having a family, being active, or doing all the things a normal 30-something-year-old should do are no longer an option.”

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