chronic illness

‘Please Mom, I don’t want to leave. I promise I’ll be good. I don’t like myself very much.’: Sister’s heartbreaking tribute to her late big brother who society deemed ‘the bad kid’

“I’d watched life treat my brother Glen so unfairly. I wanted so badly for something to go right for him. One night, he was extremely upset. My father picked my mom and I up. Glen called us to see where we were, and I still remember her last words to him. ‘We’re giving you space for the night, but we want to help you, Glen.’ The next morning, we were greeted by my dog at the front door. She was crying.”

‘After a yoga session, my spine slipped forward. I couldn’t move. I couldn’t roll over. I was a vegetable.’: Woman with Spondylolisthesis, chronic illness claims ‘pain is inevitable,’ but ‘suffering is optional’

“I remember laying in bed, feeling trapped inside myself. I had no idea at the time this injury would turn my world upside down and become the barometer for all the decisions I made for the rest of my life. Working, having a family, being active, or doing all the things a normal 30-something-year-old should do are no longer an option.”

‘But how will they function in the REAL world?!’ People judge us for homeschooling our kids. Truth is, they already are.’: Mom places children in homeschool after relentless bullying, claims they went from ‘depressed shells of humans’ to ‘thriving’

“After a long year of our kids feeling burnt out, bullied, and unsupported at their private school, we made the difficult choice to bring them home. I wish I could say it was an easy transition or that it immediately felt like the right choice. If I’m being honest, it felt like the only choice. They struggled to go to school each day and their passion for learning dwindled. We knew we had to act fast. So, we dove right in, grieving the life we were leaving behind.”

‘I was vomiting. My doctor said it was because I was ‘promiscuous.’ My mom had just hung herself.’: Woman with chronic illness claims pain won’t rob her ‘passion for living’

“The pain got so bad. I pulled over on the side of the freeway and called my dad, begging him to come get me. I became confused, disoriented. I remember thinking I could understand why my mother took her own life. It made me realize I either had to fight for my own health, or continue to fade away. I had to be stronger than my mom was. I couldn’t stop fighting.”

‘Minutes after being born the doctors noticed my skin peeling from just being wrapped in the typical blanket they use with newborns’. Woman describes the pain of living with Recessive Dystrophic Epidermolysis Bullosa

“There’s often the misconception my illness is not a big deal and it’s ‘just a skin condition.’ If my illness was as minor as people tend to believe I wouldn’t have lost the ability to walk over the years, or my hands wouldn’t be webbing from years of scarring and friction.”

‘Help!’ I banged on the wall. My parents were downstairs. I reached for my nebulizer, but quickly realized something was wrong. This is when I remember feeling very calm and a sense of peace.’: Young woman learns ‘lesson’ after near-death experience from whooping cough

“Before bed, my dad asked if I needed to go the the hospital. As a stubborn 19 year old, I somehow talked my way out of it. I told him I was ‘fine’. The next thing I remember, my parents were rushing downstairs. They immediately tried to put my nebulizer mask on, but for some reason I was pushing it away. I woke up in an ambulance. I still feel guilty about that night.”

‘The first time I fainted, I was 13. This time, I remember too clearly. My heartbeat felt like it was skipping. I started to sweat. My eyes went black.’: Woman finally diagnosed after fainting ‘hundreds of times’ with POTS

“The next thing I knew, I was laying on the floor with my mom and dad both overtop of me, staring at me with concerned expressions. When I faint, I lose consciousness, but the aftermath is always the worst part. I go into ‘autopilot mode’. I’ve ‘woken up,’ but I remember none of it. Everyone else would, though. They were always quick to tell their version of the story.”

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