Congenital heart defect

‘Mom she’s gone, I just know.’ I sat on my stairs with my front door open, in shock.’: How this ‘broken’ mother helps other parents of child loss heal after her own tragedy

“Seeing my sweet baby girl laying in a huge bed, much too big for her, made me fall to my knees. A nurse said to me, ‘Get off the floor, it’s so dirty.’ I was angry at her, I was angry at the hospital chaplain placing his eerie hand on my shoulder with no real comfort. No parent should have to write their child’s eulogy, or decide between a casket or an urn. I had absolutely no idea what I was doing.”

‘Have you been taking fertility meds?’ No! We tried for 1 child, and spontaneously got 3. TRIPLETS! It felt like, Us: ‘Let’s have another kid.’ Universe: ‘Hold my beer.’

“We had a narrow window to get pregnant before our son’s next heart battles. By week 7 I knew something was different. I remember turning to my husband and telling him, ‘Either pregnancy as you get older is exponentially harder, or we are having twins.’ I’m pretty sure that sealed our fate.”

‘What does a baby’s heart look like at 18 weeks?’ I knew something was wrong. But Tad’s father continued to say, ‘Don’t worry until we have to.’ So I tried my best not to.’

“‘He is sitting Buddha style facing away from me, so I cannot not get a good look.’ I remember watching him confirm the gender, check fingers and toes, but kept going back. He told us ‘not to worry.’ I left that appointment wanting to share the great news of, ‘we’re having a baby boy,’ but it was a double-edged sword.”

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