cuddle cot

‘It is ok darling girl, mummy and daddy love you.’ She took her last breaths in our arms.’: 10-month-old baby girl dies from incurable brain condition Miller Dieker Syndrome, ‘She had a life well lived’

“My husband said, ‘We want our baby to feel the sun on her cheeks, the wind in her hair, the love all around her.’ And she really did. Lily’s smiles are the best thing I will ever see in my lifetime. I know that. We cuddled her until she was gone. I was sobbing, crying out, ’my baby, my baby!’ We bathed her and spent one last night together. She looked so peaceful, like she was sleeping.”

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