dementia

‘As my daughter was giggling, bursting with love in the next room, I was learning she wouldn’t be growing up at all.’ Mom’s 18-month-old daughter diagnosed with ‘Childhood Alzheimer’s’

“The phone rang. I grabbed a notepad, a pen, took a deep breath. How do you prepare yourself to answer a call with the results of whether your 18-month-old daughter is going to die? My mind shut off. All the air left the room. ‘Very serious, no cure yet, not sure, lots of research.'”

‘It is never enough. You can see the loneliness in his eyes when he hugs us goodbye.’: Daughter’s ‘gut wrenching’ nightmare makes her realize just how lonely her elderly father is after wife’s death to dementia

“I had a nightmare. I was being taken to a home I didn’t recognize and into a room I had never been in before. I was in a wheelchair. My mom is telling me it will be OK. She is holding my hand, and I am crying. I tell her I want to go home, but she is telling me I am home. My heart aches for dad on the other side of the door, knowing he will lie there, waiting, for the next visit.”

‘He said, ‘I know she can’t go home,’ and was quiet the rest of the ride. Dad couldn’t get his coat off fast enough. He sat beside her, so happy to see her, saying how much he loved her.’

“She was staring straight ahead. That didn’t matter to him. He was back with his Mary Jane. I noticed it was quiet. I look over and Dad is laying on her shoulder sobbing – not crying, sobbing. After my tears started, I went in their bathroom wanted to scream. So these are the golden years?”

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