different is beautiful

‘This is when my daughter is most beautiful, covered in layers of extra skin. Celebrate her, instead of giving me pity.’: Mom of daughter with Harlequin Ichthyosis wishes people would ‘stare at her beauty’ instead of ‘hiding their stares’

“I remember vividly the first time Anna opened her eyes. She stared with such intent that I couldn’t bring myself to look away. The swelling from her eye lids had finally gone, and she opened her eyes and stared directly at me. I get mesmerized by the beauty in her skin. I know she was made for something special.”

‘I’m too loud, too quiet. A hot mess, too organized. I’ll always be too much for some, and not enough for others.’: Woman finally accepts she is ‘not everyone’s cup of tea’

“We over-analyze texts. We wonder why we didn’t get the invite. We see glances, whispers and assume they’re directed at us. We waste so much of our time worrying about other people’s opinions only to leave ourselves feeling empty. But, why? For what? This is YOUR journey. Stop doubting your own decisions. Stop looking over your shoulder. Stop trying to please everyone else.”

‘My appendix ruptured while pregnant. ‘She is perfectly healthy,’ the doctor reassured. He was so incredibly wrong.’: Mom births baby with craniosynostosis, ‘she is perfectly imperfect’

“The ultrasound photos showed a perfectly formed body, 10 beautiful fingers and toes. Once born, she cried out one time and then fell silent and blue. Her nasal passages were blocked by bone and my placenta was torn to shreds. Avery’s condition was so much more complicated than any of the photos led us to believe.”

‘Why is your mom white?’ Without skipping a beat, my son said, ‘Families don’t have to match.’ My heart exploded.’: Adoptive mom doesn’t match children ‘in color,’ but says ‘we know we match hearts’ 

“My family doesn’t look like most. I am a white mama to three beautiful, brown children. And although most of the time we don’t notice, others around us do. The thing is, although my daughter laughs just like me and my youngest son crinkles his nose when he smiles, just like I do, my family portraits will always be drawn with peach and brown crayons.”

‘Let them just hold their baby.’ He looked different. I’m filled with gratitude for her compassion.’: Couple learns of newborn’s rare genetic syndrome, encourages others to see ‘grace’ in their journey

“As we calmly talked on that moon-lit drive, my husband said something to me I’ll never forget. He broke a short silence. ‘If anyone would be trusted with a special-needs child, it would be you. You have the grace and patience to do this.’ I’m overjoyed knowing we’ve been included in an elite club.”

‘I think Evely is blind,’ my husband said. In my dreams, she had big, brown eyes. Turns out, she had NO EYES.’: Mom gives birth to baby with Anophthalmia, claims ‘my child who is blind is teaching me to see’

“As parents, we often have this pre-conceived idea about our children. What they will be like, how they will look. It can be devastating when the picture doesn’t end up looking like the one we drew in our minds. But just because it looks different, doesn’t mean it will be any less sweet. In fact, it will probably be better than the picture you created.”

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