Down syndrome

‘I got the test results. I felt I let my husband down. Like I somehow failed to give him the ‘perfect’ baby. The silence was deafening. I kept thinking, ‘Why me?’ Then I thought, ‘Wait, why NOT me?’

“I had a woman sob in my arms out of sympathy. I remember telling my husband, ‘Do you think we’ll ever laugh or be happy again?’ I figured I had 3 choices. Give up, give in, or give it everything I’ve got. I had a little boy growing inside me who I needed be strong for. I went with option 3.”

‘This was an 18-month-old Caucasian little girl. ‘Do you want to move forward?’ I looked at him as he read it. The biggest smile came over his face as he wrote, ‘YES!’ 

“I told him this wasn’t a typical ‘let’s do it’ situation. They had just received information about the bio mom of the little girl, and she was pregnant. My jaw dropped. We had never considered two kids, let alone a newborn. I can’t say I was fully on board. The next month – I was pregnant.”

‘I was told it was the ‘Cadillac of disabilities.’ His pediatrician even said, ‘Out of all the heartbreaking disabilities, his is also heartwarming.’ Down syndrome isn’t easy. We ARE special.’

“I’m here to call us out on all of our mild-mannered modesty. I’ve realized we ARE special, and we deserve that title. No, not everyone can do it. You are different. Your child is different. I am tired of wearing the martyr mask with an ‘aw shucks’ and a ‘not little ol me.’”

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