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‘If we waited 2 more weeks, you would’ve been paralyzed from the neck down.’ I was in and out of consciousness. Death wasn’t the only thing on my mind.’: 15-year-old undergoes brain surgery after feeling dizzy, discovers rare chronic brain condition, Type 1 Chiari Malformation

“I knew something was very wrong. I was barely able to hold myself up. ‘Really Jen? Pull it together.’ No one had answers. All I heard was, ‘I think you’re depressed.’ I felt like someone had filled my head with cement. At this point, I had given up. I convinced myself I was out of my mind. I laid in that MRI machine and lost track of time. I felt like my life was over at 15. The tech pulled up the images on the computer. ‘You’re going to need a neurosurgeon.’”

‘Did yoga do this to you?’ I woke up seeing double. Things took a turn. ‘I know it’s a lot to take in.’ I was shocked.’: Young woman comes to terms with multiple sclerosis diagnosis, ‘I won’t let this hold me back’

“I remember sitting in the waiting room. I lost all control of myself and burst into tears. What if the MS diagnosis was wrong? It felt wrong! I just wanted to opt-out of this, but there was no way. Still crying, I signed my name. All I felt was a little pinch before I went completely numb.”

‘What’s that? It could be something sinister. You might have a tumor.’ I got fired for being ill.’: Young woman diagnosed with Ehlers Danlos Syndrome after countless tests, ‘I was getting sicker and sicker, but with no answers’

“I was sobbing in bed one night angry at God. ‘Why won’t you take the pain away?!’ I had worked so hard despite being unwell, pushing myself to achieve. I got the grades to study music, my true passion, but was too unwell to go! I was gutted. The emergency doctor uttered the word ‘stroke.’ I was in disbelief. I was only 19 years old.”

‘Your son is deaf.’ We were praying it was a huge mistake. They wheeled him out. I lost it.’: Mom shocked by newborn’s severe hearing loss, ‘we had no family history’

“Beckett hadn’t heard for the first 13 months of his life and BAM. He was suddenly hearing. I cried on the way home, if I’m being honest. I received nasty, angry messages. I was ‘playing God’ by wanting to give him the gift of sound. Wanting our son to be able to hear us tell him ‘I love you’ was NOT a selfish thing.”

‘In a quiet voice, holding back tears, they asked if they could have ‘their’ dance. YES! You will have your dance!’: Daughters share emotional wedding dance with dying father before it’s too late

“Jason has always been the most attentive father. He’s never missed any of their events. We have raised two daddy’s girls and I was about to break their hearts. Their future suddenly looked very different. The dreams they had of their daddy walking them down the aisle had come to a screeching halt.”

‘We need to talk. Your baby’s head is BIG. His fingers look like a starfish.’ WHAT? He passed the Kleenex. I lost it.’: Mom births son with Dwarfism,  ‘he was made special on purpose’

“I thought he was joking. ‘Ohhhhh, I was hoping to walk in and see that you two were just very short. Have you ever seen the little people shows on TV?’ What the heck? He was convinced our son was a dwarf. He double checked measurements. He was actually serious! ‘What will our friends think?!’ I couldn’t breathe.”

‘Call 911!’ My baby was twitching. I held his limp body. I heard sirens. They were coming for MY child.’: Boy suffering from Childhood Epilepsy undergoes brain surgery, ‘he is now happy and living with half a brain’

“We were getting ready for a nice picnic at the park. Suddenly, the right side of his body went stiff. His oxygen dropped. First firefighters, then paramedics. Our house was full of first responders. ‘Why is nothing working?!’ I wanted to wake up from this nightmare. I wanted him to live. I held my breath.”

‘How blessed are we that I got pregnant?! I would’ve never known I had a tumor if it weren’t for the baby. I felt fine.’: Mom-to-be learns of cancer diagnosis thanks to surprise pregnancy

“This photo was taken 5 minutes before the doctor told me my tumor was cancerous. At our first ultrasound, my doctor found ‘a baseball size tumor’ on my ovary. She thought it was benign, but couldn’t tell me without biopsy. They don’t do that to pregnant women. ‘So I have to wait 9 months to find out if this thing is benign or cancerous?!’ My mind was racing. This little miracle inside me saved me from letting cancer go further.”

‘Parts of our baby’s brain were missing. I spent all my time crying. My husband spent his time avoiding it all. ‘Please don’t plan a baby shower.’ I didn’t want to return things if my baby died.’ Woman’s baby diagnosed with HPE, claims there’s ‘hope after prenatal diagnosis’

“Everyday interactions like strangers asking about my baby in the grocery store felt like ripping open a wound. I tried to prepare my 3-year-old for the chance that his baby sister may not come home from the hospital. As my due date approached, we considered planning for a funeral. But how do you truly prepare for the death of a child? I felt so bitter.”

‘I was asked if I had any questions. All I could manage to mumble was, ‘Will I lose my hair?’ I was 16. I was in high school. I was a girl. I couldn’t be bald. I just couldn’t.’

“Three words. That’s all it took. Three simple words. Everything was happening too fast. I just sat there, staring at the wall, trying not cry. When homecoming came, I had this beautiful red dress. I put on heels, makeup. Then I looked in the mirror and crumbled to the ground. What was I thinking? I looked ridiculous. I looked sick.”

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