new york city

‘I felt itching on my stomach, noticed a small black spec. I became panicked. My boss looked at me. ‘That’s a tick!’: Young woman encourages others battling invisible illness to ‘never stop fighting’

“I remember riding the train and I felt like a stranger was living in my body. I didn’t feel like myself… I felt like my world was constantly spinning, I was beyond exhausted, no matter how much I slept, and I often found myself wearing sunglasses because the light bothered me so much. Before this, I didn’t even own a pair. I got a call from the Urgent Care. ‘You tested positive for Lyme Disease. You need to come get you an antibiotic.’”

‘He said, ‘You can look like a wholesome American beauty, or you can look weird and androgynous. We want to wipe all of the wholesomeness out of you.’

“I started counting every calorie, I ignored my hunger, and I’d work out without eating much or anything after. I’d weigh myself whenever I could sneak into my parent’s bathroom. The scale dictated my happiness, the size of my clothes measured my worth. Hopefully I can sustain this starving myself thing for the next ten-ish years, I’d think to myself.”

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