PANDAS

‘I hate you! I want a different mom!’ He is getting bigger, I have to physically restrain him.’: Mom says son’s childhood has been ‘violently stolen’ due to PANDAS/PANS diagnosis, ‘It’s sad, unfair, heartbreaking’

“I wrote the single hardest thing: ‘I don’t like being a parent.’ His meltdowns consist of screaming, hitting, throwing, breaking things, slamming doors, spitting, you name it. I have to restrain him. I poured my heart out, frustrated, at my wits end. Then I got a message. ‘I think your son has PANDAS/PANS. My son does, and I think you need to have him tested.’ Then the warning came: Some people don’t believe in this diagnosis.”

‘My daughter morphed overnight. My happy girl became dead-eyed, hateful. Her pupils were dilated and dark. I felt like I lost my daughter. We couldn’t figure out how to make it stop.’

“New issues kept popping up. Screeching, laughing for no reason, wetting the bed. She couldn’t finish her sentences. She’d think all types of disturbing thoughts about hurting her little sister. I had to explain to my 5-year-old why she didn’t want to play with her anymore. I felt like a failure of a mom. I knew I had to find answers.”

‘He literally turned into a rabid wild animal! His face looked evil. I couldn’t believe this was our sweet boy.’: Son diagnosed with PANDAS disorder

“He came home from school a different boy. He wanted to hide behind the couch. He snapped and growled at his siblings. ‘Did something happen at school?,’ I asked him. ‘No,’ he replied, crying his eyes out. We started noticing unusual symptoms in our younger son too. Little did I know, this was just the beginning of our nightmare. I just didn’t know what to do to help him. One of the ladies suggested I look into PANDAS. “

‘I thought she was crazy. I got a text from my dad. ‘Your mom thinks Spencer’s tics are because of strep throat.’ I blew her off. Suddenly, he began wetting the bed nightly.’

“We had absolutely no idea what was going on. His behavior was changing. He’d been in daycare since he was 12 weeks old and LOVED his school. Now he’d cling to us at drop off and require 15 hugs before we could – with him still screaming and crying- finally leave him. We assumed he was ‘going through a phase.’ I felt like we were ‘losing’ him.”

‘Overnight, our 15-month-old’s personality changed. A once easy-going child turned aggressive, OCD’ish.’: Mom learns of son’s PANDAS/PANS diagnosis, ‘There was ZERO doubt in my mind he had this’

“He would scream bloody murder to get in the bath tub, and became obsessed with wearing ‘soft’ clothes. It was like walking on eggshells since an explosion could happen at any moment for no reason. I chalked it up to him being a toddler, with a new baby brother and all the changes military life brings. Over time, I knew this was not the case.”

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