rare condition

‘My husband was fuming. I was BORN to be her mom. She is here to prove everyone wrong.’: Daughter diagnosed with ‘extremely rare condition’ Lissencephaly, family ‘cheering for her every step of the way’

“In the coldest bedside manner alive, the doctor said, ‘There is no cure. If she lives, she’ll stop mentally developing at 2 months old. Here’s some paperwork. Any questions?’ I stared at him, my body slowly over heating. I told my husband to get me out of there. I looked up at the sky and thought, ‘Well, here we go.’”

‘I had a C-section. And it was beautiful.’

“You aren’t having a baby for the 12 hours of labor ending with a beautiful natural birth. You are having a baby for the beautiful lifetime you get to spend loving him.”

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