seizures

‘I’m having a hard time finding the baby’s head,’ the doctor said. ‘Were you bit by a mosquito during pregnancy?’: Mom births miracle baby with microcephaly, ‘He brings us endless joy!’

“I went for my routine check-up with my OB. The vibe of the room felt off. My doctor asked, ‘Have you been out of the country while pregnant?’ So many questions went through my head all at once. Is my baby alive? Is he okay? How’s his head? How many fingers and toes does he have? I was already in love with him, but so scared. And then I felt it. ‘This baby isn’t going anywhere.'”

‘After my C-section, I heard, ‘Wow! He’s got a big birthmark on his face.’: Baby is born with Port-Wine Stain and Sturge-Weber Syndrome, ‘Never did I think I would have to consider what anti-seizure medication would best keep my child thriving.’

“A bright reddish-purple color covered more than half of my newborn son’s face. ‘Will this birthmark fade? Will it get worse? What will other people think? Can this lead to other health issues?’ Looking back now, those first months of Leo’s life, I was living in fear. I was consumed by anxiety, exhaustion, and confusion.”

‘I can’t tell my dad, please, you have to.’ I couldn’t say the words. ‘Sometimes we don’t all make it to the end.’: Young woman survives cancer 3 times, says she is ‘finally living her full life’

“My husband held me as I cried and said, ‘I just don’t know if I can do it all again.’ I took a minute to figure out if it was the path I wanted to take. I was so exhausted, I didn’t know what would happen nor was I in a state to even TRY. I dug deep and knew in my heart I had to fight again. I was not going to let my family down by giving up.”

‘I noticed a strange package. It was the exact same coat. No one knew where it came from. All they could tell me was it was a male.’: Woman receives package from mystery sender in thoughtful anonymous act of kindness

“I had a Grand-Mal Seizure. I was completely unresponsive. They had to cut my clothes as a life-saving measure. I understood why, but seeing everything cut to pieces shattered me. I sobbed. As soon as I got home, I ordered another jacket. Then I noticed a strange package. It was my coat, the same style, size, color. No one had any clue what I was talking about. I want to find out who did this for me.”

‘Call 911!’ My baby was twitching. I held his limp body. I heard sirens. They were coming for MY child.’: Boy suffering from Childhood Epilepsy undergoes brain surgery, ‘he is now happy and living with half a brain’

“We were getting ready for a nice picnic at the park. Suddenly, the right side of his body went stiff. His oxygen dropped. First firefighters, then paramedics. Our house was full of first responders. ‘Why is nothing working?!’ I wanted to wake up from this nightmare. I wanted him to live. I held my breath.”

‘Why, my baby, why!’ Our boy was suffering. I never thought I’d have to make a decision like this.’: Mom urges life can ‘change drastically in minutes’ after infant son dies from heart attack, SIDS, bronchial pneumonia

“After 12 long hours, we decided to let him go. We got him Baptized and got his finger and hand prints before the doctor came in and said it was time. She put him in a little quilt and put him into my mom’s arms. Yes, my mom’s. I couldn’t hold him at that point, I was a coward.”

‘She may never walk again,’ my doctor said. ‘Like hell,’ I thought. I was 17. I’d been in a car accident.’: Single mom overcomes crippling car accident, alcoholism, daughter’s autism diagnosis, says ‘don’t count yourself out’

“I was about to move out, but I found out I was pregnant. I was running on fumes. I felt like I’d made a huge mistake becoming a mom. I wasn’t good at this. I drank to cope. My marriage ended explosively. I finally decided enough was enough when my daughter started copying everything I do. She reached for my beer, and I remember deciding, it was time to be done. For good. That was 8 months ago.”

‘What happened, buddy? What happened?’ I laid down next to him, held his hand. An eerie calm came over me.’: Father pleads ‘hug your kids, don’t work too late’ after regretting ‘missing out on things’ with twin son who suddenly died in his sleep

“The evening before was normal. He was healthy and engaged. We had kids over for dinner. We all jumped on the giant trampoline. He got bossy with the other kids and started telling everyone they were playing the game wrong. I pulled him aside. I was stern with him. Too stern in hindsight. And I made him cry. It’s one of the last interactions we had, and I’ve beaten myself up for it. I can still see the tears rolling down his face. ‘But you’re not listening to me. No one listens to me.’”

‘We begged her to let go. She kept fighting to stay with us. ‘We’ll be together soon. You need to go home,’ we said.’: Mom says daughter suffering from CHD ‘passed peacefully in my arms,’ is ‘finally at peace’

“We went to see Cora for the last time. I washed her hair and gently cleaned her body with a washcloth. I dressed her in our favorite headband and swaddled her tightly. Her sister gave Cora a kiss on her forehead. We told her to say goodbye. ‘Bye bye, Baby Cora.’ My mom took our eldest away so she could pass with my husband and I alone. She was so beautiful, looking at us with such deep love in her eyes.”

‘My son’s tiny body was wracked with seizures. I stroked his tense, shaking face, whispering his name that he was safe.’: Mom says her son is a ‘miracle’ despite debilitating Polymicrogyria diagnosis

“This moment was one I’d never in my 33 years of anxiety imagined happening to me. I held my phone steadily pointed towards my little boy, in hopes of capturing his every move on video. I was witnessing something I’d never have wished on the worst of enemies. I searched ‘Polymicrogyria,’ ran to the toilet, threw up my breakfast and curled into a tight ball. When I tell friends my son has a condition that causes epilepsy, they respond by saying, ‘at least that is treatable.’”

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