seizures

‘I got in the shower. ‘Dana, are you alright?’ My boyfriend heard a loud crash. He rolled me on my side, stuck his fingers in my mouth.’: Woman with epilepsy explains how she has ‘cheated death’ countless times

“My boyfriend heard a loud crash. ‘Dana, are you alright?!’ No response. He rushed in thinking our shower curtain simply fell. It did. But me with it. I began to choke as he rolled me on my side and stuck his fingers in my mouth. My guard was down. I woke up in the back of an ambulance.”

‘What did I do wrong to cause this sweet blonde-haired, blue-eyed boy to suffer like this?’ He woke up so smiley that morning. My husband and I were silent. ‘It’s time,’ the team said. The doors shut behind him.’

“Ten minutes went by…then 30 …then 45. I was in a total panic. Instead of the screen showing he was waking up from anesthesia, it said he was still in the O.R. There was a look of concern in his surgeon’s eyes. ‘For some reason, half of his skull expanded faster than the other.'”

‘Get here now! It’s bad, it’s real bad.’ I jumped out of bed and yelled, ‘We have to go now! Something has happened.’ I knelt down beside him. ‘I am so sorry son, I love you so much Joshua.’

“My fiancé hardly had the car in park. I jumped out and ran down the driveway toward my son. Before I could get to Josh, two police officers held me back. I cried out, ‘My baby, my baby, I want my baby!’ At that moment, I knew my worst nightmare had come true. My precious son was gone in a blink of an eye.”

‘My appendix ruptured while pregnant. ‘She is perfectly healthy,’ the doctor reassured. He was so incredibly wrong.’: Mom births baby with craniosynostosis, ‘she is perfectly imperfect’

“The ultrasound photos showed a perfectly formed body, 10 beautiful fingers and toes. Once born, she cried out one time and then fell silent and blue. Her nasal passages were blocked by bone and my placenta was torn to shreds. Avery’s condition was so much more complicated than any of the photos led us to believe.”

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