seizures

‘Through screaming, I coded at 1:25 p.m. 5 minutes later, my son was born not breathing. He was bagged and taken for CPR.’: Mom births baby with rare apert syndrome

“The next thing I knew I felt like I was drowning. I could hear codes being called as my birth got harder to take.‘He’s not fatal, but we have no idea what’s wrong.’ He had 10 fingers and 10 toes, but they were fused together. A first-time mom, I feared I was going to break him. Every irrational fear went through my mind.”

‘Maybe she hasn’t discovered her left arm yet?’ My baby was only using her right hand. Something was ‘wrong’ with my perfect, healthy girl.’: Daughter’s Hemorrhagic Stroke misdiagnosed for months, mom ‘beyond proud’ of her despite disabilities

“At her 6-month checkup, the pediatrician casually asked, ‘Does she switch toys back and forth between both hands?’ When I answered no, she said, ‘Oh no. This really isn’t normal.’ In the center of her brain was a burst vessel. This was both shocking and devastating. We were done waiting for her to ‘discover’ her arm. It wasn’t supposed to be like this. This was not in my plans, at all.”

‘My husband was fuming. I was BORN to be her mom. She is here to prove everyone wrong.’: Daughter diagnosed with ‘extremely rare condition’ Lissencephaly, family ‘cheering for her every step of the way’

“In the coldest bedside manner alive, the doctor said, ‘There is no cure. If she lives, she’ll stop mentally developing at 2 months old. Here’s some paperwork. Any questions?’ I stared at him, my body slowly over heating. I told my husband to get me out of there. I looked up at the sky and thought, ‘Well, here we go.’”

‘It looked like she was doing a stomach crunch. Both arms and legs came together in the air. This went on for hours.’: Mother thrilled to have her ‘happy baby back’ after Infantile Spasms diagnosis

“We first noticed a weird movement when she was 5 months. Doctors said, ‘It’s just gas. Change her to soy milk,’ and, ‘It’ll pass.’ It wasn’t until her dad decided to search ‘spasms,’ that we began to gain insight into this nightmare. Something in me snapped. She was using our daughter for her own research. ‘I’m so sorry baby,’ her dad always said. Through all this, Salma has never shown signs of giving up.”

‘Teachers noticed my 5-year-old making weird movements. ‘It’s all in her head,’ the doctor said.’: Mom demands answers for daughter who has 15 episodes a day of what appears to be seizures, actually is PNKD diagnosis

“Madie continued to have these strange ‘spells’ where her body would paralyze itself. The doctor walked in the room and told me she is making all of this up, and I should take her to a psychiatrist. I made it very clear I was not leaving that room until someone could tell me what was wrong with my daughter.”

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