special needs child

‘I have 2 bio kids, 2 adopted, 3 special needs foster children. I wanted nothing to do with the ‘white picket’ American Dream.’: Special needs mom cherishes the ‘beautiful chaos’ of ‘meeting the needs of others’

“‘Your baby has a large mass. Prepare for the worst.’ I was learning how to be married, live in a city where we knew no one, being first-time teachers and parents to a baby who may or may not be okay. The older, wiser folks warned us to slow down. And yet none of this chaos ever silenced the call we felt to pursue adoption and fostering. Our life is absolutely crazy. But I look through my dark-circled eyes at this beautiful mess and know I’m right where I need to be.”

‘What’s wrong with her fingers?,’ my husband asked. ‘They look strange, but they’re perfect.’ Then he saw her toes.’: Parents surprised by daughter’s Apert Syndrome diagnosis, ‘she just wants to be loved’

“The doctor yelled to get the NICU team as soon as possible. They came in so fast we could hardly get a picture. I don’t remember anything afterwards except that my husband googled her syndrome based on her appearance, and I was left alone in the delivery room. No husband. No baby. I asked for a Diet Coke. They only had Diet Pepsi.”

‘We were given a pamphlet. Everything said ‘lethal’. My boy had other plans.’: Baby with Osteogenesis Imperfecta ‘makes his own rules,’ defies all medical odds

“I didn’t learn anything was wrong with my son until 2 weeks before I had him. It went from ‘something might be wrong with his foot’ to ‘he is completely incompatible with life’. We waited for the genetic results to come back knowing every hour could be his last. All I could think was, ‘This can’t be his story.’ He’s a warrior.”

‘What? No hands?’ My Dad was minutes away from picking my husband up. The Universe chose me to be Ivy’s mom.’: Mother learns of daughter’s limb difference, refuses terminating pregnancy because ‘she was ours to love, protect’

“My husband firmly, passionately said to me, ‘I’ll do whatever I have to do to take care of her. I’ll build her anything. I want her. I’ll do whatever it takes. I’ll take care of her for the rest of her life.’ He was right. She saw me and said, ‘Yes. I want her. I want HER to be my mommy.’”

‘What about me?’ He sees all the babies getting adopted. He deserves a family too. Our answer was a shaky, scared ‘yes.’: Foster mom on the ‘trauma’ yet ‘joy’ when you ‘Say yes to an older child’

“Within 24 hours I went from mothering toddlers, to a 7-year-old. I wasn’t sure what to do. We were walking on eggshells, wondering when the lid would blow. I was closing his bedroom door. He stopped me. ‘Mommy, you’re a really good Mom.’ I slid down the door in silent sobs. Those words, coming from that boy, meant more than any accolade I could ever receive.”

‘I found myself divorced and single at 40, no kids. I didn’t want to wait any longer! As my adoption match fell apart, I fell in love. Life changed overnight.’ Woman takes in special needs stepson after mother’s sudden death

“It felt like a bomb went off in our family. My head was swirling with fear, confusion, doubt. We went from being a carefree couple that traveled to full-time caregivers of a medically complex child. Call it intuition, gut instinct. I had no idea what to do or how to do it, but I knew with absolute certainty I was ready.”

‘IT’S A GIRL!’ Suddenly I hear the words, ‘What about the cleft,’ and then deafening silence.’: Mother discovers shocking diagnosis after daughter’s birth

“My baby’s face was still hidden. I shot straight up, and that’s when I saw my baby girl for the first time. The world stopped. ‘Babe look…’ All I heard was silence. ‘Babe look,’ ‘babe look.’ My mom was screaming at my husband. His eyes were glazed over. ‘Everything’s okay, she’s perfect and she’ll be okay.’”

‘I was told it was the ‘Cadillac of disabilities.’ His pediatrician even said, ‘Out of all the heartbreaking disabilities, his is also heartwarming.’ Down syndrome isn’t easy. We ARE special.’

“I’m here to call us out on all of our mild-mannered modesty. I’ve realized we ARE special, and we deserve that title. No, not everyone can do it. You are different. Your child is different. I am tired of wearing the martyr mask with an ‘aw shucks’ and a ‘not little ol me.’”

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