special needs

‘I don’t want this life. I’m not cut out for this!’ I heard ‘I’m sorry’ on the other end. Adrenaline began, my face got hot. Then the tears started to roll.’: Boy with down syndrome diagnosed with acute lymphoblastic leukemia

“Oliver was on vacation with his dad when I got the call. ‘He stopped walking.’ Weeks pass. His lymph nodes are swollen. Something just wasn’t right. I remember telling my boss, ‘I have to leave!’ Before I could even get a response, I was gone. I’m worried the ER doctor missed something. The doctor is quiet. I can see in her eyes she is trying to stay calm for me, but something is there. I scream. Deep down, she knows something I don’t.”

‘No Jack! No doctor!’ I hold him tightly, feel his heart beating. It is heart breaking. I question why I put him through what feels like torture.’: Mom thankful for affectionate siblings who help calm autistic brother, ‘It just melted my heart’

“I have had to physically put myself between our boy and the floor so he doesn’t hurt himself by banging his head in frustration. It is heart breaking. I make sure to bring Jack to all of his siblings’ visits as well. WHY?! These rare moments. ‘Oh Jack, I’m not hurt. Give me a hug!’ She assured her anxious brother. ‘See Jack, Maddie is okay.’ Olivia whispered into his hear. It quickly became a sister sandwich. How beautiful is that?”

‘They were born like this. There is nothing we can do.’ They were tied to beds, drugged, covered in bruises. I couldn’t accept that answer.’: Woman helps dozens of abused, disabled children find loving homes, preaches ‘every child has value’

“I entered the orphanage. Hundreds of children were living there, but the halls were silent, expect the occasional wail or moan. I saw skeletal bodies, empty eyes, smelly diapers. I heard doctors calling them ‘disasters.’ One child had a sack of fluid coming from the back of her skull. It was her brain, and it was leaking fluid. Children were covered in cigarette burns. I couldn’t believe my eyes. And I couldn’t look away. I knew I had to help.”

‘I’m having a hard time finding the baby’s head,’ the doctor said. ‘Were you bit by a mosquito during pregnancy?’: Mom births miracle baby with microcephaly, ‘He brings us endless joy!’

“I went for my routine check-up with my OB. The vibe of the room felt off. My doctor asked, ‘Have you been out of the country while pregnant?’ So many questions went through my head all at once. Is my baby alive? Is he okay? How’s his head? How many fingers and toes does he have? I was already in love with him, but so scared. And then I felt it. ‘This baby isn’t going anywhere.'”

‘My ears got hot, my blood was boiling. I took a screen shot of his soul-crushing report card. My mommy instinct was pissed.’: Mom appalled by son with Down syndrome’s report card, ‘Stay angry. Keep fighting for your child.’

“The envelope showed up in Judah’s backpack. I wasn’t expecting his report card, but I was eager to see how the goals we put in place manifested themselves. Imagine my surprise when that paper was littered with the lowest scores possible. My stomach lurched. My logical brain understood, but my mommy instinct was still pissed. Imagine how this little boy will feel when he understands what those 1’s will signify?!”

‘My son makes fun of the autistic boy in his class and it’s hilarious!’ You could hear a pin drop. We stopped our giggling, and turned to her.’: Mom of son with autism raises awareness about adult bullying

“I immediately thought I must not have heard her incorrectly. No one would think this, let alone say it out loud. She continued without fear. ‘My son has the whole act down. He covers his ears, repeats words, and even does a hand twitch! He has the flap down perfectly.’ My stomach dropped. I started repeating to myself, ‘Do not cry. Do not cry.’ I willed myself to hold it together. My son covers his ears. My son’s hands twitch. My son flaps his hands. And one of my greatest fears is he will be bullied for it.”

‘My daughter took her final breath. I felt a sudden surge of energy rush into my body. I carried her downstairs to the gurney.’: Grieving father recalls ‘hardest thing’ he’s ever done, ‘Sophia needed her Daddy one last time’

“When the funeral coordinator arrived, I gently picked Sophia up one last time. I carried her down the stairs to the gurney waiting for her. I made sure she was carefully secure as she was loaded into the van to the funeral home. I was lucky to be her daddy. I still have not grieved from watching my beautiful sweet girl die. I write her name in the shower on the glass with a big heart every day. It’s my way of remembering her.”

‘You must be so relieved. I bet you can’t wait to take her to Target.’ This medical hell would follow us home for years to come.’: Mother shares reality of daughter’s tracheostomy post NICU, ‘If I was going to do this, I’d become the best damn trach parent ever’

“If I was going to do this, I’d become the best damn trach parent that ever lived. The reality is, while our NICU chapter is over, this is far from normal. I can’t take Lily to the store, or anywhere, alone. My husband and I haven’t been alone in 4 months. One of us needs to be awake around the clock to care for her. There is no longer privacy in our home as our ‘special guests’ come in and out all day and night.”

‘This kitten isn’t going to sell.’ He had a cleft lip, crooked jaw, and one eye. She was going to kill him.’: Animal lover opens her home to special needs kitty, says ‘He opened my eyes to a whole world that deserves more attention.’

“I fell in love the second I saw him. He was just skin and bones and clearly malnourished. The breeder didn’t want her buyers to know her cat had genetic issues or was bred too soon. I could tell Cricket would fit right in with our crew.”

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