strep throat

‘I hate you! I want a different mom!’ He is getting bigger, I have to physically restrain him.’: Mom says son’s childhood has been ‘violently stolen’ due to PANDAS/PANS diagnosis, ‘It’s sad, unfair, heartbreaking’

“I wrote the single hardest thing: ‘I don’t like being a parent.’ His meltdowns consist of screaming, hitting, throwing, breaking things, slamming doors, spitting, you name it. I have to restrain him. I poured my heart out, frustrated, at my wits end. Then I got a message. ‘I think your son has PANDAS/PANS. My son does, and I think you need to have him tested.’ Then the warning came: Some people don’t believe in this diagnosis.”

‘I thought she was crazy. I got a text from my dad. ‘Your mom thinks Spencer’s tics are because of strep throat.’ I blew her off. Suddenly, he began wetting the bed nightly.’

“We had absolutely no idea what was going on. His behavior was changing. He’d been in daycare since he was 12 weeks old and LOVED his school. Now he’d cling to us at drop off and require 15 hugs before we could – with him still screaming and crying- finally leave him. We assumed he was ‘going through a phase.’ I felt like we were ‘losing’ him.”

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