terminal illness

‘As my daughter was giggling, bursting with love in the next room, I was learning she wouldn’t be growing up at all.’ Mom’s 18-month-old daughter diagnosed with ‘Childhood Alzheimer’s’

“The phone rang. I grabbed a notepad, a pen, took a deep breath. How do you prepare yourself to answer a call with the results of whether your 18-month-old daughter is going to die? My mind shut off. All the air left the room. ‘Very serious, no cure yet, not sure, lots of research.'”

‘I felt pregnant, but the odds were slim. Brad had been declared sterile. No one had ever survived a recurrence from this disease.’: Woman gets pregnant with ‘miracle baby’ despite husband’s terminal cancer diagnosis

“‘Go home and enjoy the time you have left,’ our doctor told us. Brad could not reckon the idea of leaving me as a single mom. But, I could not reckon the idea of not having a piece of him here with me on earth. We decided to take a giant leap of faith.”

‘Are you sick? Should I get tested?’ My first instinct was denial. ‘I’m not sick. If you want to get tested, do it. You don’t have it!’ I was confused. How could she even say that to me?! I was shocked!’

“My dad proceeded to tell me the illness could be passed down to me as well. I wanted to get tested right away. My dad urged me to take it slow. When I got married the next year and found out we were expecting our first child, I knew in my heart I needed to know. On a crisp spring morning, I took the test. That’s when I realized it.”

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