trisomy 18

‘Our son’s entire 18 hours and 16 minutes of life, he was never alone. He was fiercely loved, deeply cherished, and widely celebrated.’: Mom turns loss of son’s ‘fleeting life’ to Trisomy 18 into ‘something of value’

“We were going to travel, tackle, and triumph over every inch of this world. I asked myself one very important question, ‘How can I transform my son’s fleeting life and too-soon death into something of value?’ I thought I lost the chance to have a great adventure with Cole when I lost him, but I think our great adventure together is really just beginning.”

‘Parts of our baby’s brain were missing. I spent all my time crying. My husband spent his time avoiding it all. ‘Please don’t plan a baby shower.’ I didn’t want to return things if my baby died.’ Woman’s baby diagnosed with HPE, claims there’s ‘hope after prenatal diagnosis’

“Everyday interactions like strangers asking about my baby in the grocery store felt like ripping open a wound. I tried to prepare my 3-year-old for the chance that his baby sister may not come home from the hospital. As my due date approached, we considered planning for a funeral. But how do you truly prepare for the death of a child? I felt so bitter.”

‘My doctor held my hand and started, ‘Tami…’ In that moment, I knew. I couldn’t breathe because I knew. Or at least I thought I did. My heart exploded with relief!’

“We were walking out of the house when a feather floated right in front of us. As we sat enjoying our morning coffee, another tiny feather made an appearance. On the drive home, I kept thinking … two feathers … what does that mean? But I had a hunch. I went straight to the bathroom and found a pregnancy test.”

‘How old are you?’ I thought that was strange. ‘I’m 26,’ I told him. ‘Oh, you’re young. This could mean nothing.’: Mom says the ‘beauty far outweighs the challenges’ of daughter’s Down syndrome diagnosis

“The nurses started to really study Lucy. I could hear them say she was ‘really floppy, and was not moving her arms and legs.’ That her arms and legs would flop down to the table when the nurses would pick them up. Finally, she asked if she could speak candidly to us. I still feel those conflicting emotions every now and again, but my grateful and happy feelings far outweigh the fearful or sad ones.”

For our best love stories, subscribe to our free email newsletter:

Queries: 104 Timer: 0.19323

Cache Hits: 4409 Cache Misses: 520